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Journal of the Korean Academy of Rehabilitation Medicine 1996;20(2):31.
Methodology for Assessing and Promoting the Quality of Life in Patients with Epilepsy
김연희, 김형일1, 고대하2, 우영종3, 김기원4, 이민철5, 신용일, 장종환6 Yun-Hee Kim, M.D., Hyoung Ihl Kim, M.D.1, Dae-Ha Ko, M.D.2, Young-Jong Woo, M.D.3, Ki-Won Kim, M.D.4, Min-Chul Lee, M.D.5, Young-Il Shin, M.D. And Jong-Hwan Jang, B.A.6
Department of Rehabilitation Medicine, Neurosurgery1, Preventive Medicine2, Pharmacology4, and Social Service6, Chonbuk National University Medical School, Department of Pediatrics3 and Anatomical Pat
간질환자의 재활 및 꾫의 질 평가
전북대학교 의과대학 재활의학교실, 신경외과학교실1, 예방의학교실2, 약리학교실4, 전북대학교병원 사회복지사6, 전남의대 소아과학교실3, 해부병리과학교실5

Epilepsy impact a person's life in various aspects; not only physical but also psychological and social. Quality of life in patients with epilepsy may be impaired by seizures, side effects of medication, and psychological problems. Therefore, the assessment of outcome of epilepsy treatment should be comprehensive to include psychosocial and vocational aspects. The purpose of this study is to develope the appropriate assessment system for the quality of life of epileptic patients, to deliniate the functional problems and influencing factors on it, and to establish the community delivery system for effective management of epileptic patients in their community.

We used the translated and revised Quality of Life in Epilepsy-89 (QOLIE-89) inventory which is a comprehensive and reliable self-report measure which encompasses 89 questions about physical, mental, and social functioning and well-being. We evaluated the test-retest reliability in 20 patients with epilepsy and 20 normal persons. We also evaluated the quality of life in 126 epileptic patients and compared the results with that of 46 normal persons. Furthermore, we analysed the 7 socioeconomic and clinical variables of epileptic patients to deliniate the most influencing factors on the quality of life of the epileptic patients. In addition, we investigate the community resources in Wanju-kun area to establish the effective community delivery system for early detection, proper treatment, and referral of the patients with epilepsy.

Out of 18 dimensions of QOLIE-89K, all dimensions except 'role-limitation-physical' showed high correlation between test and retest scores than control group in epileptic patients, and all dimentions except 'pain' in normal persons. The patients with epilepsy marked lower scores than control group in 10 dimentions of QOLIE-89K including 'overall quality of life', 'role oimitations-physical, 'work/driving/social functions'. 'energy/fatigue', 'emotional well-being', 'attention/concerntration', 'health discouragement', 'memory'. 'language', and 'social isolation' with statistical significance. The most influencing factors on the quality of life of epileptic patients were duration of education and economic status. The age of patient, age of seizure onset, and frequency of seizure were also influenced upon some dimensions of QOLIE-89K.

One hundred and seventeen epileptic patients were investigated at Wanju-kun through community delivery system and it showed 0.14% of pravalence rate in this community, which is lower than expectation.

Further research is required to add more reliability in some dimentions of QOLIE-89K, to define other influencing variables on quality of life, and establish the comprehensive and effective management systems for the patients with epilepsy.

Key Words: Epilepsy, Quality of life, Quantitative assessment


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