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"Hyung-Ik Shin"

Review Article

Neuromuscular disorders

The impact of disease-modifying therapy ranges from cure to no impact with a wide range of intermediates. In cases where the intermediate group reaches a plateau after the acquisition of some muscle strength, it is necessary to set a functional level appropriate for increased motor power and establish a long-term exercise plan to maintain it. As the disease status stabilizes and the life span increases, early nonsurgical interventions are required, such as using a standing frame to prevent joint contracture, applying a spinal brace at the early stage of scoliosis, and maintaining sitting postures that exaggerate lumbar lordosis. In cases where scoliosis and hip displacement occur and progress even after conservative managements are implemented, early referral to surgery should be considered. Oromotor activity and swallowing function are influenced not only by the effects of disease-modifying drugs, but also by post-birth experience and training. Therefore, although the feeding tube cannot be removed, it is necessary to make efforts to simulate the infant feeding development while maintaining partial oral feeding. Since the application period of non-invasive ventilators has increased, it has become more important to prevent long-term complications such as facial abrasion, skin allergy, orthodontic deformities, and maxillary flattening caused by the interface. Dual ventilator mode or interface can also be utilized.

Citations

Citations to this article as recorded by  
  • Physical and Respiratory Rehabilitation in Spinal Muscular Atrophy: A Critical Narrative Review
    Serena Cammarano, Vincenzo Alessio Chirico, Benedetto Giardulli, Giovanna Mazzuoccolo, Carlo Ruosi, Bruno Corrado
    Applied Sciences.2025; 15(8): 4398.     CrossRef
  • Treatment Guidelines and Rehabilitation in Spinal Muscular Atrophy and Duchenne’s Muscular Dystrophy
    Eleni Drakou, Sarah Wright, Leslie D. Delfiner, David Cancel
    Physical Medicine and Rehabilitation Clinics of North America.2025;[Epub]     CrossRef
  • Management of Hip and Spine in Neuromuscular Disorders
    Unwana Abasi, Abigail Allen, Coral Candelario-Velazquez, Sheena Ranade
    Physical Medicine and Rehabilitation Clinics of North America.2025;[Epub]     CrossRef
  • 3,766 View
  • 141 Download
  • 1 Web of Science
  • 3 Crossref

Corrigendum

Correction: Reliability and Validity of the Korean Version of the Duchenne Muscular Dystrophy Functional Ability Self-Assessment Tool
Kyunghyun Lee, Sung Eun Hyun, Hyung-Ik Shin, Hye Min Ji
Ann Rehabil Med 2023;47(3):228-229.   Published online June 21, 2023
DOI: https://doi.org/10.5535/arm.23013.e
Corrects: Ann Rehabil Med 2023;47(2):79
  • 2,033 View
  • 26 Download

Original Articles

Neuromuscular disorders

Reliability and Validity of the Korean Version of the Duchenne Muscular Dystrophy Functional Ability Self-Assessment Tool
Kyunghyun Lee, Sung Eun Hyun, Hyung-Ik Shin, Hye Min Ji
Ann Rehabil Med 2023;47(2):79-88.   Published online April 18, 2023
DOI: https://doi.org/10.5535/arm.23013
Correction in: Ann Rehabil Med 2023;47(3):228
Objective
To systematically translate the Duchenne muscular dystrophy Functional Ability Self-Assessment Tool (DMDSAT) into Korean and verify the reliability and validity of the Korean version (K-DMDSAT).
Methods
The original DMDSAT was translated into Korean by two translators and two pediatric physiatrists. A total of 88 patients with genetically confirmed Duchenne muscular dystrophy (DMD) participated in the study. They were evaluated using the K-DMDSAT once as a self-assessment and once by an interviewer. The interviewer evaluated the K-DMDSAT again 1 week later using a test-retest approach. The intraclass correlation coefficient (ICC) was used to verify the interrater and test-retest reliabilities. Pearson correlation analysis between the K-DMDSAT and the Brooke or Vignos scales were used to assess validity.
Results
The total score and all domains of the K-DMDSAT showed excellent interrater and test-retest reliability, with an ICC for total scores of 0.985 and 0.987, respectively. All domains had an ICC >0.90. From the Pearson correlation analysis, the total K-DMDSAT score was significantly correlated with the Vignos and Brooke scales (r=0.918 and 0.825, respectively; p<0.001), and each domain of K-DMDSAT showed significant correlation with either the Vignos or Brooke scales.
Conclusion
DMDSAT was systematically translated into Korean, and K-DMDSAT was verified to have excellent reliability and validity. K-DMDSAT can help clinicians easily describe and categorize various functional aspects of patients with DMD through the entire disease progression.

Citations

Citations to this article as recorded by  
  • Muscle Pathology Associated With Cardiac Function in Duchenne Muscular Dystrophy
    Jin A Yoon, Heirim Lee, In Sook Lee, You Seon Song, Byeong-Ju Lee, Soo-Yeon Kim, Yong Beom Shin
    Annals of Rehabilitation Medicine.2024; 48(6): 405.     CrossRef
  • 3,619 View
  • 136 Download
  • 2 Web of Science
  • 1 Crossref

Rehabilitation Policy

Development and Validation of a New Scale to Assess Attitudes and Perspectives Toward Persons With Disabilities
Youho Myong, Hyung-Ik Shin, Jeong-Eun Lee, Woosup Cho, You Gyoung Yi
Ann Rehabil Med 2021;45(4):331-340.   Published online August 30, 2021
DOI: https://doi.org/10.5535/arm.21046
Objective
To develop and validate a scale to assess people’s attitudes and perspectives toward persons with disabilities.
Methods
The three-stage development of the scale included a preliminary version drafted from the literature review and a nominal group process. Thereafter, the draft was examined further and revised through two rounds of Delphi survey by 16 disability experts. Lastly, the psychometric properties of the scale were assessed through an online survey of 1,359 employees at three university hospitals.
Results
A 32-item scale, defined after two Delphi surveys, was refined into 14 items with four subcategories: community integration, discomfort, charitability, and sense of burdening. The Cronbach’s alpha coefficient was 0.839 and domain reliability from 0.638 to 0.845. Recent education on disabilities yielded more positive attitudes toward persons with disabilities. Meaningful acquaintances with disabilities yielded more positive attitudes toward persons with disabilities.
Conclusion
This newly developed scale that measures attitudes toward persons with disability is reliable and valid. A future use of the scale could be to measure attitudinal improvements toward persons with disabilities after awareness education.

Citations

Citations to this article as recorded by  
  • Measuring health sciences students' attitudes toward persons with disabilities: Is one scale better than another?
    Isabel Hartner, William S. Brooks, Tanvee Sinha, Ashley Parish, Donald H. Lein, Elizabeth Wylie, Cathy Carver, David Goretzko, Adam B. Wilson
    Anatomical Sciences Education.2025;[Epub]     CrossRef
  • Employers’ Perspectives of Important Skills for Employees With Disabilities: The Entry-Level Employability Skills and Behaviors Scale
    Kyle Reardon, Dawn A. Rowe, Deanne K. Unruh
    Assessment for Effective Intervention.2025; 50(2): 97.     CrossRef
  • Psychometric properties of the Iranian version of the attitudes to disability scale in people with physical disabilities
    Mahnaz Pouresmaeil, Tahereh Dehdari, Isa Mohammadi Zeidi, Neda Mohammadi, Seyed Habib A Rahmati
    BMC Psychology.2025;[Epub]     CrossRef
  • Integration of Disability Awareness Improves Medical Students’ Attitudes Toward People with Disabilities
    Tanvee Sinha, Ashley Parish, Donald H. Lein, Elizabeth Wylie, Cathy Carver, William S. Brooks
    Medical Science Educator.2024; 34(3): 561.     CrossRef
  • The use of virtual nominal groups in healthcare research: An extended scoping review
    Seung Ho Lee, Olle ten Cate, Michael Gottlieb, Tanya Horsley, Beverley Shea, Karine Fournier, Christopher Tran, Teresa Chan, Timothy J. Wood, Susan Humphrey-Murto, Nabeel Al-Yateem
    PLOS ONE.2024; 19(6): e0302437.     CrossRef
  • Teacher’s attitudes
    Ana Paula Loução Martins, Garcia Tomás
    Educação.2024; 47(1): e45156.     CrossRef
  • Being Perceived as a Vital Force or a Burden: The Social Utility-Based Acceptance/Rejection (SUBAR) Model
    Michael Dambrun
    Frontiers in Sociology.2024;[Epub]     CrossRef
  • Drama therapists’ attitudes and perspectives regarding dis/ability: A community survey
    Turner Hitt, Cassandra Doria, Caitlin McFann, Kelly Young, Angelle Cook, Ella Anghel, Becky Salituro, Taylor Windle
    The Arts in Psychotherapy.2024; 91: 102216.     CrossRef
  • Sikap masyarakat terhadap penyandang disabilitas: faktor jenis kelamin, usia, dan tingkat pendidikan
    Amaliah Amaliah, Karlina Dieka Rasnah, Ratu Indah Rachmayanti, Najib Hibatullah, Siti Musayaroh
    LITERAL: Disability Studies Journal.2024; 2(01): 1.     CrossRef
  • 8,731 View
  • 220 Download
  • 7 Web of Science
  • 9 Crossref
Knee Extensor Strength Measurement in Patients With Limited Physical Activity Using a Supine Dynamometer Anchoring Frame
Min-Yong Lee, Kwan-Sik Sung, Hyungsuk Ham, You Gyoung Yi, Hyung-Ik Shin
Ann Rehabil Med 2020;44(6):502-509.   Published online December 31, 2020
DOI: https://doi.org/10.5535/arm.20056
Objective
To investigate the reliability of knee extensor strength measurements using a supine hand-held dynamometer (HHD) anchoring frame in patients with limited physical activity. Although an HHD is suitable for bedside use, its inter-rater reliability is low because measurements can be influenced by tester strength.
Methods
Maximal knee extensor isometric strength was measured using an HHD anchored to the supine frame. Three trials of three maximal contractions were assessed by two raters.
Results
A total of 33 inpatients who were non-ambulatory due to acute illness participated in the study. The intraclass correlation coefficients were 0.974 (inter-rater) and 0.959 (intra-rater). The minimal detectable changes in intra- and inter-observer measurements were 29.46 N (24.10%) and 36.73 N (29.26%), respectively. The limits of agreement ranged from -19.79% to 24.81% for intra-rater agreement and from -21.45% to 37.07% for inter-rater agreement.
Conclusion
The portable dynamometer anchoring system can measure the isometric strength of the knee extensor reliably in the supine position, and could be used for measurements in patients who have difficulty visiting the laboratory and maintaining a seated posture.

Citations

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  • Mim-pong: a serious game for assessment and treatment of the lower limb in hemiparetic stroke patients
    Fernando L. F. Eichinger, Fabrício Noveletto, Susana C. Domenech, Thierry Moulin, Yoshimasa Sagawa, Antonio Vinicius Soares
    Archives of Physiotherapy.2025; : 59.     CrossRef
  • Toe Grip Strength Is Associated with Improving Gait Function in Patients with Subacute Stroke
    Jin-Whan Ryu, In-Su Hwang, Sol Jin, Soo-A Kim, Min-Su Kim
    Brain Sciences.2024; 14(3): 215.     CrossRef
  • Development and validation of a portable articulated dynamometry system to assess knee extensor muscle strength
    Youho Myong, Sungwoo Park, Minwoo Cho, Seung Yeon Cho, Woo Hyung Lee, Byung-Mo Oh, Sungwan Kim
    Scientific Reports.2023;[Epub]     CrossRef
  • 5,726 View
  • 130 Download
  • 3 Web of Science
  • 3 Crossref

Clinical Practice Guideline

Clinical Practice Guideline for Cardiac Rehabilitation in Korea
Chul Kim, Jidong Sung, Jong Hwa Lee, Won-Seok Kim, Goo Joo Lee, Sungju Jee, Il-Young Jung, Ueon Woo Rah, Byung Ok Kim, Kyoung Hyo Choi, Bum Sun Kwon, Seung Don Yoo, Heui Je Bang, Hyung-Ik Shin, Yong Wook Kim, Heeyoune Jung, Eung Ju Kim, Jung Hwan Lee, In Hyun Jung, Jae-Seung Jung, Jong-Young Lee, Jae-Young Han, Eun Young Han, Yu Hui Won, Woosik Han, Sora Baek, Kyung-Lim Joa, Sook Joung Lee, Ae Ryoung Kim, So Young Lee, Jihee Kim, Hee Eun Choi, Byeong-Ju Lee, Soon Kim
Ann Rehabil Med 2019;43(3):355-443.   Published online June 28, 2019
DOI: https://doi.org/10.5535/arm.2019.43.3.355
Objective
Though clinical practice guidelines (CPGs) for cardiac rehabilitation (CR) are an effective and widely used treatment method worldwide, they are as yet not widely accepted in Korea. Given that cardiovascular disease is the second leading cause of death in Korea, it is urgent that CR programs be developed. In 2008, the Government of Korea implemented CR programs at 11 university hospitals as part of its Regional Cardio-Cerebrovascular Center Project, and three additional medical facilities will be added in 2019. In addition, owing to the promotion of CR nationwide and the introduction of CR insurance benefits, 40 medical institutions nationwide have begun CR programs even as a growing number of medical institutions are preparing to offer CR. The purpose of this research was to develop evidence-based CPGs to support CR implementation in Korea.
Methods
This study is based on an analysis of CPGs elsewhere in the world, an extensive literature search, a systematic analysis of multiple randomized control trials, and a CPG management, development, and assessment committee comprised of 33 authors—primarily rehabilitation specialists, cardiologists, and thoracic surgeons in 21 university hospitals and two general hospitals. Twelve consultants, primarily rehabilitation, sports medicine, and preventive medicine specialists, CPG experts, nurses, physical therapists, clinical nutritionists, and library and information experts participated in the research and development of these CPGs. After the draft guidelines were developed, three rounds of public hearings were held with staff members from relevant academic societies and stakeholders, after which the guidelines were further reviewed and modified. Principal Conclusions CR involves a more cost-effective use of healthcare resources relative to that of general treatments, and the exercise component of CR lowers cardiovascular mortality and readmission rates, regardless of the type of coronary heart disease and type and setting of CR. Individualized CR programs should be considered together with various factors, including differences in heart function and lifestyle, and doing so will boost participation and adherence with the CR program, ultimately meeting the final goals of the program, namely reducing the recurrence of myocardial infarction and mortality rates.

Citations

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  • Transforming patient education in cardiac rehabilitation: A vision for the future
    Gabriela Lima de Melo Ghisi
    Patient Education and Counseling.2025; 138: 109176.     CrossRef
  • Impact of Cardiac Rehabilitation Health Insurance Coverage on Cardiac Rehabilitation Use in Korea Using an Interrupted Time Series
    Yu Shin Park, In Sun Song, Suk‐Yong Jang, Chung Mo Nam, Eun‐Cheol Park
    Journal of the American Heart Association.2024;[Epub]     CrossRef
  • Smartphone application-based rehabilitation in patients with chronic respiratory and cardiovascular diseases
    Chiwook Chung, Ah-Ram Kim, Dongbum Kim, Hee Kwon, Seong Ho Lee, Il-Young Jang, Min-Woo Jo, Do-Yoon Kang, Sei Won Lee
    Scientific Reports.2024;[Epub]     CrossRef
  • Exercise intensity prescription in cardiovascular rehabilitation: bridging the gap between best evidence and clinical practice
    Juliana Goulart Prata Oliveira Milani, Mauricio Milani, Kenneth Verboven, Gerson Cipriano, Dominique Hansen
    Frontiers in Cardiovascular Medicine.2024;[Epub]     CrossRef
  • Cardiac rehabilitation for patients with coronary artery disease
    Jang Woo Lee
    Journal of the Korean Medical Association.2024; 67(9): 566.     CrossRef
  • Awareness of cardiac rehabilitation in people with cardiovascular diseases in Hatay: A cross-sectional study
    İrem HÜZMELİ, Nihan KATAYIFÇI, Oğuz AKKUŞ, Dilay SUNGUR
    Anadolu Kliniği Tıp Bilimleri Dergisi.2023; 28(3): 382.     CrossRef
  • Smartphone application-based rehabilitation in patients with chronic respiratory and cardiovascular diseases: a randomised controlled trial study protocol
    Chiwook Chung, Ah-Ram Kim, Il-Young Jang, Min-Woo Jo, Seongho Lee, Dongbum Kim, Hee Kwon, Do-Yoon Kang, Sei Won Lee
    BMJ Open.2023; 13(9): e072698.     CrossRef
  • Fact Sheet on Cardiac Rehabilitation for Cardiovascular Disease in South Korea
    Ki-Hong Kim, Jae-Young Han
    Annals of Rehabilitation Medicine.2023; 47(5): 318.     CrossRef
  • Ventilatory Gas Analysis during Cardiopulmonary Exercise Testing
    Sora Baek
    Annals of CardioPulmonary Rehabilitation.2023; 3(2): 47.     CrossRef
  • Evaluation of Current Resources Available for Community-Based Cardiac Rehabilitation in Korea: A Nationwide Survey Study
    Chul Kim, Jidong Sung, Jae-Young Han, Sungju Jee, Jang Woo Lee, Jong Hwa Lee, Won-Seok Kim, Heui Je Bang, Sora Baek, Kyung Lim Joa, Ae Ryoung Kim, So Young Lee, Jihee Kim, Chung Reen Kim, Oh Pum Kwon
    Journal of Korean Medical Science.2022;[Epub]     CrossRef
  • A Comparison of Barrier Factors between Hospitals with and without Cardiac Rehabilitation Programs in Korea: A Nation-Wide Survey Research
    Chul Kim, Jidong Sung, Jae-Young Han, Sungju Jee, Jang Woo Lee, Jong Hwa Lee, Won-Seok Kim, Heui Je Bang, Sora Baek, Kyung-Lim Joa, Ae Ryoung Kim, So Young Lee, Jihee Kim, Chung Reen Kim, Oh Pum Kwon
    Journal of Clinical Medicine.2022; 11(9): 2560.     CrossRef
  • Long-term Management of Patients with Myocardial Infarction: An Updated Review
    Runzhen Chen, Hanjun Zhao, Hongbing Yan
    Cardiology Discovery.2022; 2(4): 241.     CrossRef
  • Evaluation of the efficacy of Tian dan shu gan rehabilitation exercise in improving the short-term quality of life of patients with acute myocardial infarction after percutaneous coronary intervention
    Jia-Yan Qu, Jing-Bo Lu, Yong-Hong Shen, Rong Yao, Cai-Ping Meng, Li-Yuan Rong
    Frontiers of Nursing.2022; 9(4): 389.     CrossRef
  • Clinical Practice Guideline for Postoperative Rehabilitation in Older Patients With Hip Fractures
    Kyunghoon Min, Jaewon Beom, Bo Ryun Kim, Sang Yoon Lee, Goo Joo Lee, Jung Hwan Lee, Seung Yeol Lee, Sun Jae Won, Sangwoo Ahn, Heui Je Bang, Yonghan Cha, Min Cheol Chang, Jung-Yeon Choi, Jong Geol Do, Kyung Hee Do, Jae-Young Han, Il-Young Jang, Youri Jin,
    Annals of Rehabilitation Medicine.2021; 45(3): 225.     CrossRef
  • Cardiac Rehabilitation in Patients with Ischemic Heart Disease
    Yun-Chol Jang, Jae-Young Han
    Annals of CardioPulmonary Rehabilitation.2021; 1(1): 42.     CrossRef
  • Current Status of Cardiac Rehabilitation in the Regional Cardiocerebrovascular Centers in Korea
    Chul Kim, Jidong Sung, Jae-Young Han, Sungju Jee, Jang Woo Lee, Jong Hwa Lee, Won-Seok Kim, Heui Je Bang, Sora Baek, Kyung-Lim Joa, Ae Ryoung Kim, So Young Lee, Jihee Kim, Chung Reen Kim, Oh Pum Kwon
    Journal of Clinical Medicine.2021; 10(21): 5079.     CrossRef
  • Factors associated with health-related quality of life in Chinese patients with heart failure: a cross-sectional study
    Guangpeng Wang, Qingmin Yang
    Collegian.2020; 27(5): 512.     CrossRef
  • Validation of FRIEND and ACSM Equations for Cardiorespiratory Fitness: Comparison to Direct Measurement in CAD Patients
    Won Young Jang, Dong Oh Kang, Yoonjee Park, Jieun Lee, Woohyeun Kim, Jah Yeon Choi, Seung-Young Roh, Yuna Jang, Se-Hyun Park, Woo-Sub Kim, Jin Oh Na, Cheol Ung Choi, Seung-Woon Rha, Chang Gyu Park, Hong Seog Seo, Eung Ju Kim
    Journal of Clinical Medicine.2020; 9(6): 1889.     CrossRef
  • Underutilization of Hospital-based Cardiac Rehabilitation after Acute Myocardial Infarction in Korea
    Sun-Hyung Kim, Jun-soo Ro, Yoon Kim, Ja-Ho Leigh, Won-Seok Kim
    Journal of Korean Medical Science.2020;[Epub]     CrossRef
  • Community-Based Cardiac Rehabilitation Conducted in a Public Health Center in South Korea: A Preliminary Study
    Sora Baek, Yuncheol Ha, Jaemin Mok, Hee-won Park, Hyo-Rim Son, Mi-Suk Jin
    Annals of Rehabilitation Medicine.2020; 44(6): 481.     CrossRef
  • Cardiac rehabilitation and 5-year mortality after acute myocardial infarction. Report from 11 tertiary hospitals in Korea (ETHIK Study)
    Chul KIM, Insun CHOI, Songhee CHO, Jae-Young HAN, Ae-Ryoung KIM, Won-Seok KIM, Sungju JEE, Jong H. LEE, Min C. JOO, Heui J. BANG, Kyung-Lim JOA, Eun Y. HAN, Sora BAEK, Jung-Im SHIM, Jin A. CHOI
    European Journal of Physical and Rehabilitation Medicine.2020;[Epub]     CrossRef
  • 27,726 View
  • 459 Download
  • 18 Web of Science
  • 21 Crossref

Original Articles

A New Functional Scale and Ambulatory Functional Classification of Duchenne Muscular Dystrophy: Scale Development and Preliminary Analyses of Reliability and Validity
Jungyoon Kim, Il-Young Jung, Sang Jun Kim, Joong-Yub Lee, Sue Kyung Park, Hyung-Ik Shin, Moon Suk Bang
Ann Rehabil Med 2018;42(5):690-701.   Published online October 31, 2018
DOI: https://doi.org/10.5535/arm.2018.42.5.690
Objective
To develop a simplified functional scale and classification system to evaluate the functional abilities of patients with Duchenne muscular dystrophy (DMD).
Methods
A Comprehensive Functional Scale for DMD (CFSD) was developed using the modified Delphi method. The accompanying Ambulatory Functional Classification System for DMD (AFCSD) was developed based on previously published classification systems.
Results
The CFSD consists of 21 items and 78 sub-items, assessing body structure and function, activities, and participation. Inter-rater intraclass correlation coefficient values were above 0.7 for 17 items. The overall limits of agreement between the two examiners ranged from -6.21 to 3.11. The Spearman correlation coefficient between the total score on the AFCSD and the Vignos Functional Scale was 0.833, and 0.714 between the total score of the AFCSD and the Brooke scale. Significant negative correlations existed between the total score for each functional level of the AFCSD and each functional grade of the Vignos and Brooke scales. The total scores of the CFSD varied significantly between the functional grades of the Vignos scale, and specific grades of the Brooke scale. For the AFCSD, total scores of the CFSD varied significantly between the functional levels.
Conclusion
We have developed a new scale and the associated classification system, to assess the functional ability of children diagnosed with DMD. Preliminary evaluation of the psychometric properties of the functional scale and classification systems indicate sufficient reliability and concurrent validity.

Citations

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  • Frequent Unrecognized Vertebral Fractures Associated with Increased Body Fat Mass in Children and Adolescents with Duchenne Muscular Dystrophy
    Kanlaya Prasiw, Chaiyos Khongkhatithum, Praman Fuangfa, Arpakorn Kositwattanarerk, Pat Mahachoklertwattana, Preamrudee Poomthavorn
    Neuropediatrics.2025; 56(01): 012.     CrossRef
  • Pulmonary Dysfunction in Children with Dystrophinopathy: A Cross-Sectional Study
    Ankit Kumar Meena, Gautam Kamila, Vaishak Anand, Biswaroop Chakrabarty, Kana Ram Jat, S. K. Kabra, R. M. Pandey, Sheffali Gulati
    Indian Journal of Pediatrics.2025;[Epub]     CrossRef
  • A review of evaluation methods for Duchenne muscular dystrophy
    Zeinab Famili, Hadi Soltanizadeh, Bita Shalbafan
    Medicine in Novel Technology and Devices.2025; 26: 100358.     CrossRef
  • Quality and Independence of Gait Classification Scale for Duchenne Muscular Dystrophy (QIGS-DMD): the development, validity and reliability
    Güllü Aydın-Yağcıoğlu, İpek Alemdaroğlu-Gürbüz, Öznur Tunca
    European Journal of Physiotherapy.2025; : 1.     CrossRef
  • Declaración de posición. Recomendaciones sobre el uso de escalas de seguimiento y evaluación y manejo de la salud ósea en la distrofia muscular de Duchenne
    Diana Pilar Soto-Peña, Edicson Ruiz-Ospina, J.C Prieto, Juan David Lasprilla-Tovar, Sandra Milena Castellar-Leones, Norma Carolina Barajas-Viracachá, Paulo César Becerra-Ortiz, Edna Julieth Bobadilla-Quesada, Carlos Ernesto Bolaños-Almeida, José Manuel
    Revista Ciencias de la Salud.2025; 23(Especial): 1.     CrossRef
  • Diagnóstico y manejo de las complicaciones cardiacas en el paciente con distrofia muscular de Duchenne
    Manuel Huertas Quiñones, Fernando Suárez Obando, Norma Carolina Barajas Viracachá, Paulo César Becerra Ortiz, Edna Julieth Bobadilla Quedada, Carlos Ernesto Bolaños Almeida, José Manuel Cañón Zambrano, Sandra Milena Castellar-Leones, Jenny Libeth Jura
    Revista Ciencias de la Salud.2025; 23(Especial): 1.     CrossRef
  • Draft Guidance for Industry Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Related Dystrophinopathies – Developing Potential Treatments for the Entire Spectrum of Disease
    Craig McDonald, Eric Camino, Rafael Escandon, Richard S. Finkel, Ryan Fischer, Kevin Flanigan, Pat Furlong, Rose Juhasz, Ann S. Martin, Chet Villa, H. Lee Sweeney
    Journal of Neuromuscular Diseases.2024; 11(2): 499.     CrossRef
  • Timed rolling and rising tests in Duchenne muscular dystrophy ambulant boys: a feasibility study
    Agnieszka SOBIERAJSKA-REK, Joanna JABŁOŃSKA-BRUDŁO, Aneta DĄBROWSKA, Wiktoria WOJNICZ, Jarosław MEYER-SZARY, Jolanta WIERZBA
    Minerva Pediatrics.2024;[Epub]     CrossRef
  • Cataloging health state utility estimates for Duchenne muscular dystrophy and related conditions
    Lauren A. Do, Lauren E. Sedita, Alexa C. Klimchak, Rachel Salazar, David D. Kim
    Health and Quality of Life Outcomes.2024;[Epub]     CrossRef
  • Muscle Pathology Associated With Cardiac Function in Duchenne Muscular Dystrophy
    Jin A Yoon, Heirim Lee, In Sook Lee, You Seon Song, Byeong-Ju Lee, Soo-Yeon Kim, Yong Beom Shin
    Annals of Rehabilitation Medicine.2024; 48(6): 405.     CrossRef
  • Reliability and Validity of the Korean Version of the Duchenne Muscular Dystrophy Functional Ability Self-Assessment Tool
    Kyunghyun Lee, Sung Eun Hyun, Hyung-Ik Shin, Hye Min Ji
    Annals of Rehabilitation Medicine.2023; 47(2): 79.     CrossRef
  • The Development of an Interview Questionnaire and Guide for the Sustainable Use of Assistive Devices among the Disabled in Korea
    Eun-Rae Ro, Kwang-Ok An, Myung-Joon Lim, Sung-Yong Lee, Dong-Ah Kim, Seon-Deok Eun
    Sustainability.2023; 15(17): 12812.     CrossRef
  • Development and Validation of an Outpatient Clinical Predictive Score for the Diagnosis of Duchenne Muscular Dystrophy/Becker Muscular Dystrophy in Children Aged 2–18 Years
    Indar Kumar Sharawat, Aparna Ramachandran, Prateek Kumar Panda, Aman Elwadhi, Apurva Tomar
    Annals of Indian Academy of Neurology.2023; 26(4): 453.     CrossRef
  • The Effect of Adiposity on Cardiovascular Function and Myocardial Fibrosis in Patients With Duchenne Muscular Dystrophy
    Sarah E. Henson, Sean M. Lang, Philip R. Khoury, Cuixia Tian, Meilan M. Rutter, Elaine M. Urbina, Thomas D. Ryan, Michael D. Taylor, Tarek Alsaied
    Journal of the American Heart Association.2021;[Epub]     CrossRef
  • Revisiting the pathogenic role of insulin resistance in Duchenne muscular dystrophy cardiomyopathy subphenotypes
    Antoine Fakhry AbdelMassih, Reem Esmail, Hanan Zekri, Ahmed Kharabish, Khaled ElKhashab, Rahma Menshawey, Habiba-Allah Ismail, Peter Afdal, Erini Farid, Omneya Affifi
    Cardiovascular Endocrinology & Metabolism.2020; 9(4): 165.     CrossRef
  • 17,653 View
  • 269 Download
  • 14 Web of Science
  • 15 Crossref
Needs for Medical and Rehabilitation Services in Adults With Cerebral Palsy in Korea
Myung Woo Park, Won Sep Kim, Moon Suk Bang, Jae Young Lim, Hyung-Ik Shin, Ja-Ho Leigh, Keewon Kim, Bum Sun Kwon,, Soong-Nang Jang, Se Hee Jung
Ann Rehabil Med 2018;42(3):465-472.   Published online June 27, 2018
DOI: https://doi.org/10.5535/arm.2018.42.3.465
Objective
To investigate medical comorbidities and needs for medical and rehabilitation services of adults with cerebral palsy (CP) in Korea.
Methods
This was a prospective cross-sectional study. One hundred fifty-four adults with CP were enrolled in the study between February 2014 and December 2014. Information was obtained from participants regarding functional status, demographic and socioeconomic data, medical problems, and requirements for and utilization of medical and rehabilitation services.
Results
The participants included 93 males and 61 females with a mean age of 40.18±9.15 years. The medical check-up rate of adults with CP was lower than that of healthy adults and the total population with disabilities (53.2% vs. 58.6% vs. 70.4%). A quarter of the subjects failed to visit the hospital during the past year, and the main reason was the financial burden. Due to a cost burden and lack of knowledge, more than one-third of the subjects had unmet needs for rehabilitation services; the majority reported needs for rehabilitation services, such as physical therapy for pain management.
Conclusion
The medical check-up rate was lower in the adults with CP, even though their medical comorbidities were not less than those of healthy people. Several non-medical reasons hindered them from receiving proper medical and rehabilitation services. Such barriers should be managed effectively.

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Is WHODAS 2.0 Useful for Colorectal Cancer Survivors?
Hyun Haeng Lee, Eun-Kyoung Shin, Hyung-Ik Shin, Eun Joo Yang
Ann Rehabil Med 2017;41(4):667-676.   Published online August 31, 2017
DOI: https://doi.org/10.5535/arm.2017.41.4.667
Objective

To compare the disability level of colorectal cancer survivors with and without stoma by using the Korean version of the 12-item, interview-administered World Health Organization Disability Assessment Schedule 2.0 (Korean version of WHODAS 2.0).

Methods

This is a multicenter (five tertiary university hospitals and the Korea Ostomy Association) and cross-sectional survey. Colorectal cancer survivors with and without stoma were interviewed. Survey measured disability level using the Korean version of WHODAS 2.0 and health-related quality of life using the SF-36.

Results

A significant difference was observed between patients with and without a stoma in two subdomains: getting around (31.1 vs. 20.3; p=0.013) and participation in society (32.3 vs. 22.2; p=0.028). After adjusting for age, gender, and time since surgery, having a stoma was associated with severe to extreme disabilities in participation (OR=2.72, p=0.045). The Korean version of WHODAS 2.0 showed satisfactory internal consistency (r=0.96) and convergent validity.

Conclusion

Patients with stoma participated less in society than those without stoma. The Korean version of WHODAS 2.0 is a reliable and valid instrument for measuring disability in Korean colorectal cancer patients.

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Reply to Letter to the Editor

In Reply: Paralysis Developing as a Paradoxical Response During the Treatment for Tuberculous Spondylitis
Jae Hyeon Park, Yeo Hyung Kim, Chan Hyuk Kwon, Hyung-Ik Shin
Ann Rehabil Med 2015;39(2):329-329.   Published online April 24, 2015
DOI: https://doi.org/10.5535/arm.2015.39.2.329
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Case Report

Paralysis Developing as a Paradoxical Response During the Treatment for Tuberculous Spondylitis: A Case Report
Jae Hyeon Park, Yeo Hyung Kim, Chan Hyuk Kwon, Hyung-Ik Shin
Ann Rehabil Med 2014;38(3):405-409.   Published online June 26, 2014
DOI: https://doi.org/10.5535/arm.2014.38.3.405

It can be difficult for clinicians to distinguish a paradoxical response to antituberculous therapy, worsening of an existing lesion despite adequate treatment, treatment failure, and drug resistance. We report a case of a 69-year-old woman who experienced bilateral lower extremity paralysis secondary to a paradoxical response. She had been suffering for 1 month from low back pain, due to tuberculous spondylitis. Her low back pain improved after antituberculous therapy. The low back pain, however, reappeared 2 months after treatment, accompanied by newly developed lower extremity weakness. Imaging studies showed an increased extent of her previous lesions. Consequently, the patient underwent a vertebral corpectomy with interbody fusion of the thoracolumbar spine. Histopathological examination showed chronic inflamed granulation tissue with no microorganisms. Although the antituberculous medication was not changed, the patient's symptoms and signs, including the paralysis, resolved after surgery.

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Original Articles
Access to Medical Services in Korean People With Spinal Cord Injury
Jeong-Gil Kim, Hyung Seok Nam, Byungkwan Hwang, Hyung-Ik Shin
Ann Rehabil Med 2014;38(2):174-182.   Published online April 29, 2014
DOI: https://doi.org/10.5535/arm.2014.38.2.174
Objective

To investigate the accessibility of medical services for Korean people with spinal cord injury (SCI) compared to the control group (CG) and to evaluate significantly related factors.

Methods

A total of 363 community dwelling people with chronic SCI were enrolled and 1,089 age- and sex-matched subjects were randomly selected from the general population as the CG. Self-reported access to medical services was measured by asking "Have you experienced the need for a hospital visit in the last year but could not?". This was followed up by asking the reasons for not receiving services when medically necessary. Variables, including lack of finances, difficulties making medical appointments, and lack of transportation were evaluated for accessibility to medical services.

Results

Sixty subjects (16.5%) in the SCI group had difficulties receiving medical services due to a lack of accessibility, compared to 45 (4.1%) in the CG (p<0.001). Variables causing difficulties receiving medical services were lack of transportation (27 persons, 45%), lack of finances (24 persons, 40%), and difficulty scheduling hospital appointments (9 persons, 15%) in the SCI group. In the CG, availability (lack of available time) and acceptability (deciding not to visit the hospital due to mild symptoms) were the reasons for not receiving medical care.

Conclusion

People with SCI experienced limited accessibility to medical services, which was due to environmental rather than personal factors compared to that in the CG. Therefore, development of social policies to reduce or remove environmental variables is necessary.

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Factors That Influence Employment After Spinal Cord Injury in South Korea
Eun-Na Kang, Hyung-Ik Shin, Hye-Ri Kim
Ann Rehabil Med 2014;38(1):38-45.   Published online February 25, 2014
DOI: https://doi.org/10.5535/arm.2014.38.1.38
Objective

To investigate employment status after spinal cord injury (SCI) and identify personal, family, and injury characteristics those affect their employment in South Korea.

Methods

Participants were 334 community-dwelling persons 20-64 years of age who had sustained SCI for more than one year. Investigators visited each participant's home to carry out the survey. Bivariate and binary logistic regression analyses were performed to identify personal, family, and injury characteristics that influenced employment after SCI.

Results

Employment rate decreased significantly from 82.5% to 27.5% after SCI. Logistic regression showed that the probability of employment was higher in men than women, and in individuals older than 45 years at the time of injury than those aged 31-45 years of age. Moreover, employment was higher in individuals injured for longer than 20 years than those injured for 1-5 years and in individuals with incomplete tetraplegia than those with complete paraplegia. Employment was lower in individuals with SCI caused by industrial accidents than those injured in non-industrial accidents.

Conclusion

Injury characteristics are the most important predictors of employment in persons with SCI. For persons with lower employment rate, individualized vocational rehabilitation and employment-support systems are required.

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Length of Hospital Stay in Patients with Spinal Cord Injury
Hye Jin Jang, Jieung Park, Hyung-Ik Shin
Ann Rehabil Med 2011;35(6):798-806.   Published online December 30, 2011
DOI: https://doi.org/10.5535/arm.2011.35.6.798
Objective

To provide the latest statistics about the length of hospital stay (LOS) and the number of hospitals where the patient was admitted (NHA) for patients with spinal cord injury (SCI) and to investigate the correlated demographic characteristics.

Method

In total, 277 patients with SCI who were members of the Korea Spinal Cord Injury Association were included in the analysis. The survey was conducted by self-completed questionnaires to collect data on LOS, NHA, and demographic variables.

Results

Mean LOS was 13.5±9.7 months and the mean NHA was 2.7±1.4. Patients who suffered from SCI by traffic accidents showed a longer LOS and larger NHA than those with other causes. The mean LOS for patients with traumatic SCI was longer than that whose cause of injury was disease. Patients discharged in the 2000s had a longer LOS and a larger NHA than those discharged earlier. Other factors such as gender, age at the time of injury, neurological category, and ambulation capability did not result in a significant difference in either LOS or NHA.

Conclusion

The mean LOS of domestic patients with SCI was longer than the values reported in foreign studies. Interestingly, neither neurological category nor functional status were related to LOS. These findings suggest that other factors such as socio-psychological factors, other than the medical state of the patient, have an effect on the LOS of patients with SCI in Korea.

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Unmet Healthcare Needs in People with Disabilities: Comparison with the General Population in Korea
Byungkwan Hwang, Sung-Min Chun, Jong-Hyock Park, Hyung-Ik Shin
Ann Rehabil Med 2011;35(5):627-635.   Published online October 31, 2011
DOI: https://doi.org/10.5535/arm.2011.35.5.627
Objective

To determine the degree of disparity in unmet healthcare needs between people with disabilities and the general population in South Korea, and to analyze their perspective reasons.

Method

Survey results of 9,744 subjects that participated in the 4th Korea National Health and Nutrition Examination Survey and 7,000 people that participated in the 2008 Survey of Disabled people were used in this population-based cross-sectional study. Unmet healthcare needs were identified as reporting experience during the last 12 months when there was a need to see a doctor, but were unable to get it. We assessed unmet healthcare needs by demographic variables, social variables and characteristics of disability. Chi-square test and logistic regression were used to determine which variables were related to unmet healthcare needs.

Results

A total of 22.1% of people with disabilities and 22.8% of the general population had unmet healthcare needs. However, brain impairment (25.3%) and physical impairment (25.2%) had more unmet healthcare needs than the general population and other disabilities. Unmet healthcare needs of people with disabilities was related to sex, age, self-perceived health, marital status, income, occupation and category of disability. Whereas the reasons for unmet healthcare needs in people with disabilities were lack of money (57.3%) and inaccessible transportation (12.8%), those for the general population were no available time (30.2%) and mild symptoms (23.8%).

Conclusion

Brain and physical impairment cases with limitations to accessible transportation had the higher unmet healthcare needs. In addition, the reasons for people with these disabilities were more environmental than those of the general population.

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